Wayback Machine. Internet Archive.
Screenshot Wayback Machine. Internet Archive. (page saved incompletely)
‘Revolutions are the locomotives of history.’ Karl Marx
CHAPTERS:
1.
BIRTH TO DOT COM THEN NGO
"I’ve been imitated so well I’ve heard people copy my mistakes"- Jimi Hendrix I was born in Malaysia, 1967, 'naturalised' at birth in a British Military Maternity Hospital as an Australian citizen. …
2.
SYLVIA SHAWCROSS: FOUNDATION
"Plagiarism saves time"- Stephen Hawking The selection of community members to the Board Of Directors (BOD) and the selection of medical members to the Medical & Scientific Advisory Board of the global…
3.
FROM DISABLE TO ENABLE
"Self-plagiarism is style"- Alfred Hitchcock What sometimes may be forgotten is that while those with our chronic disease (Hidradenitis Suppurativa) are uniquely essential to present and future medical research, those with our chronic disease also may need additional supports, within the workplace, and outside of the workplace. This aspect of HS itself,…
4.
FIRST MEDICAL TEXTBOOK ON HS
"The secret to creativity is knowing how to HIDE your sources." Albert Einstein This section, along with parts one and two of my essay, lying here vivisected into one unequal part, is largely a record of 'straight history' using my past perspective from 2005 to 2007, with little present comment. I mention this here, because I ask a question of myself and…
5.
FAST FORWARD: AMERICAN LEADERSHIP.
"I want to run, I want to HIDE. I want to tear down the walls that hold me inside. I wanna reach out and touch the flame, where the streets have no name." U2 (1987, The Joshua Tree)
6.
IT'S NOT ABOUT ME, BUT
"You know the day destroys the night. Night divides the day Tried to run, tried to HIDE. Break on through to the other side." The Doors,1967. If the previously described behaviour from those producing the first medical textbook on HS is true or even if it is just partially true, it may provide a very helpful, enlightening & personal context as I look ba…
7.
IT'S ALL ABOUT US
"Yesterday, love was such an easy game to play. Now I need a place to HIDE away. Oh, I believe in yesterday" The Beatles 1967 By 'us' I mean the historical collective of people with HS from 1996 to 2023. The dead. The living. The yet to be. The treated, the untreated. The ignored. The ones left behind. The ones never trying to seek financi…
8.
PATERNAL & PATRIOTIC FASCISM
"Lost inside, adorable illusion and I cannot HIDE" Blondie, 1979 You may not know how strange it is for me to NOT see any concerted effort since 2016 to celebrate the actual, historical and real people with HS (Hidradenitis Suppurativa) leadership & engagement in HS medical research for decades? You also may not know that I have been extremely puzzled by…
9.
10.
DIRECTIONS 2026: PRIDE in pwHS*.
*pwHS = people with HS; those who control their own lives, their own destiny, those who own their own ideas, their own work, their own advocacy, their own thoughts, their own hopes, dreams, desires, poetry and diseases to such an extreme extent of freedom, liberty and independence that they forever reject the paternal noun: "patient".